Last week Wirral MPs Alison McGovern and Frank Field attended a meeting at the Department for Health to raise the plight of their young constituents who have both received a diagnosis of Diffuse Intrinsic Pontine Glioma otherwise known as DIPG
Alison and Frank met with the Under Secretary of State for Health Lord O’Shaughnessy to bring to his attention the cases of Lucy Moroney and Edie Molyneux. Both children are from the Wirral and are battling against DIPG which is a form of brain tumour.
Lucy and Edie have both received local and national coverage in the press for campaigns to send them to Mexico. The Wirral community have got behind both of them to help fund treatment in Mexico.
Mexico offers treatment for DIPG that isn’t available in the UK which means Lucy and Edie have to travel with their families all the way to Mexico to undergo treatment there. Their families believe this treatment offers the best chance for them.
Speaking about Lucy and Edie Alison said: “I have met with both the parents of Lucy and Edie and their situation is heart breaking. Receiving such a diagnosis is devastating and the families haven’t only had to deal with this but they have also needed to fundraise to travel all the way to Mexico for treatment. They explained to me how hard this has been for them.
Adding: “Wirral people will have been following Lucy’s and Edie’s stories in the local media and I want to thank them for getting behind the fundraising efforts. I wanted to raise the issue of treatment for DIPG with the government. I believe it is really important the government look at this issue and I want the government to explore what can be done to help not just Lucy and Edie but other children facing the same situation.”
Edie’s MP Frank Field said: “Alison and I have been so touched by the experiences of Edie, Lucy and their families. We are now really anxious, having shared those experiences with the Minister, to ensure the Government follows up our request for the NHS to contribute the remainder of the sums required to cover all the costs associated with their treatment. The contributions made so far by Wirral residents have been stunning. We now need the Government’s efforts to be equally stunning in meeting what is left of the shortfall.’